Death or Disability?: The 'Carmentis Machine' and decision-making for critically ill children

In ancient Rome parents would consult the priestess Carmentis shortly after birth to obtain prophecies of the future of their newborn infant. Today, parents and doctors of critically ill children consult a different oracle. Neuroimaging provides a vision of the child's future, particularly of the nature and severity of any disability. Based on the results of brain scans and other tests doctors and parents face heart-breaking decisions about whether or not to continue intensive treatment or to allow the child to die.Paediatrician and ethicist Dominic Wilkinson looks at the profound and contentious ethical issues facing those who work in intensive care caring for critically ill children and infants. When should infants or children be allowed to die? How accurate are predictions of future quality of life? How much say should parents have in these decisions? How should they deal with uncertainty about the future? He combines philosophy, medicine and science to shed light on current and future dilemmas.

Politics & Social Sciences

Wilkinson, Dominic

Philosophy

Oxford University Press

In ancient Rome parents would consult the priestess Carmentis shortly after birth to obtain prophecies of the future of their newborn infant. Today, parents and doctors of critically ill children consult a different oracle. Neuroimaging provides a vision of the child's future, particularly of the nature and severity of any disability. Based on the results of brain scans and other tests doctors and parents face heart-breaking decisions about whether or not to continue intensive treatment or to allow the child to die. Paediatrician and ethicist Dominic Wilkinson looks at the profound and contentious ethical issues facing those who work in intensive care caring for critically ill children and infants. When should infants or children be allowed to die? How accurate are predictions of future quality of life? How much say should parents have in these decisions? How should they deal with uncertainty about the future? He combines philosophy, medicine and science to shed light on current and future dilemmas.

Self-Help

Death & Grief

Notable undiscovered architects, like undiscovered composers, are implausible, yet Frances Xavier Velarde OBE, 1897-1960, could be just such a person hiding in plain sight. A stylish architect who took a road less travelled then died as he was getting into his stride. There have been no followers. Yet whenever enthusiasts gather to discuss modern church architecture his name will be mentioned. He was no earnest modernist; instead he loved patterns, bold colour and gold. The Catholic churches he built in Liverpool and London are closer to European Expressionism than International Modernism; many of them have a toy like quality and come with a campanile like a rocket. Today his buildings seem fresh and playful, but also poignant as they evoke the 1950s, brightening the drab parts in which they are to be found and serving to make both spiritually and architecturally aware those who visit. Many are threatened and have been published here for the first time. Dominic Wilkinson and Andrew Crompton have combined Velarde's papers with interviews and archive images, including many by his friend and famous photographer Edward Chambré Hardman. Their book, lavishly illustrated with new photography by Historic England, is a must for architects, students and connoisseurs wanting to discover a different route that modernism could have taken.

F. X. Velarde (Twentieth Century Architects)

Arts & Photography

Crompton, Andrew

Architecture

Historic England

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Books by Wilkinson, Dominic