The story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, Emily asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side.
A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in black magic, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations.
While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment.

Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes

Politics & Social Sciences

Urquhart, Emily

Social Sciences

Harper

Like any new mother, Emily is thrilled when her first child, a daughter, is born. The baby, Sadie, is healthy and stunningly beautiful, with snow white hair and fair skin. Even the doctors and nurses can’t help a second look at this magical child. But soon a darker current begins to emerge—something is amiss. After three months of testing, Sadie is diagnosed with albinism, a rare genetic condition.
Emily, a folklore scholar and an award-winning journalist, is accustomed to understanding and processing the world through stories. With Sadie at her side, Emily researches the cultural beliefs surrounding albinism and finds a curious history of outlandish tales of magic, and of good and evil reaching back through time, along with present-day atrocities. In some parts of the world, people with albinism are stalked; their condition is seen to bring luck and health as well as danger and death. Investigating the different reactions, in different cultures, to those with albinism, Emily begins to see her child as a connection between worlds.
Part memoir, part cultural critique, and part genetic travelogue, Beyond the Pale is a brave, intimate investigation into the secret histories that each of us carries in our genes and an inspiring and beautiful memoir about parenting a child with a disability—and building a better future for that child.

Beyond The Pale: Folklore, Family, and the Mystery of Our Hidden Genes

Biographies & Memoirs

Memoirs

HarperAvenue

Like any new mother, Emily is thrilled when her first child, a daughter, is born. The baby, Sadie, is healthy and stunningly beautiful, with snow white hair and fair skin. Even the doctors and nurses can’t help a second look at this magical child. But soon a darker current begins to emerge―something is amiss. After three months of testing, Sadie is diagnosed with albinism, a rare genetic condition.
Emily, a folklore scholar and an award-winning journalist, is accustomed to understanding and processing the world through stories. With Sadie at her side, Emily researches the cultural beliefs surrounding albinism and finds a curious history of outlandish tales of magic, and of good and evil reaching back through time, along with present-day atrocities. In some parts of the world, people with albinism are stalked; their condition is seen to bring luck and health as well as danger and death. Investigating the different reactions, in different cultures, to those with albinism, Emily begins to see her child as a connection between worlds.
Part memoir, part cultural critique and part genetic travelogue, Beyond the Pale is a brave, intimate investigation into the secret histories that each of us carries in our genes and an inspiring and beautiful memoir about parenting a child with a disability―and building a better future for that child.

Community & Culture

Harper-perennial

A moving portrait of a father and daughter relationship and a case for late-stage creativity from Emily Urquhart, the bestselling author of Beyond the Pale: Folklore, Family, and the Mystery of Our Hidden Genes. "The fundamental misunderstanding of our time is that we belong to one age group or another. We all grow old. There is no us and them. There was only ever an us." -- from The Age of Creativity It has long been thought that artistic output declines in old age. When Emily Urquhart and her family celebrated the eightieth birthday of her father, the illustrious painter Tony Urquhart, she found it remarkable that, although his pace had slowed, he was continuing his daily art practice of drawing, painting, and constructing large-scale sculptures, and was even innovating his style. Was he defying the odds, or is it possible that some assumptions about the elderly are flat-out wrong? After all, many well-known visual artists completed their best work in the last decade of their lives, Turner, Monet, and Cézanne among them. With the eye of a memoirist and the curiosity of a journalist, Urquhart began an investigation into late-stage creativity, asking: Is it possible that our best work is ahead of us? Is there an expiry date on creativity? Do we ever really know when we've done anything for the last time? The Age of Creativity is a graceful, intimate blend of research on ageing and creativity, including on progressive senior-led organizations, such as a home for elderly theatre performers and a gallery in New York City that only represents artists over sixty, and her experiences living and travelling with her father. Emily Urquhart reveals how creative work, both amateur and professional, sustains people in the third act of their lives, and tells a new story about the possibilities of elder-hood.

The Age of Creativity: Art, Memory, My Father, and Me

Arts & Photography

Individual Artists

The Walrus Books

Shortlisted for the 2023 Hilary Weston Writers’ Trust Prize for Nonfiction\nA journalist and folklorist explores the truths that underlie the stories we imagine—and reveals the magic in the everyday. 
“I’ve always felt that the term fairy tale doesn’t quite capture the essence of these stories,” writes Emily Urquhart. “I prefer the term wonder tale, which is Irish in origin, for its suggestion of awe coupled with narrative. In a way, this is most of our stories.” In this startlingly original essay collection, Urquhart reveals the truths that underlie our imaginings: what we see in our heads when we read, how the sight of a ghost can heal, how the entrance to the underworld can be glimpsed in an oil painting or a winter storm—or the onset of a loved one’s dementia. In essays on death and dying, pregnancy and prenatal genetics, radioactivity, chimeras, cottagers, and plague, Ordinary Wonder Tales reveals the essential truth: if you let yourself look closely, there is magic in the everyday.

Ordinary Wonder Tales

Literature & Fiction

Essays & Correspondence

Biblioasis

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Books by Urquhart, Emily