This is an extraordinary and moving account of a family coping with Friedreich's Ataxia, a debilitating genetic illness. It describes how Krystie and her family coped with the diagnosis, the intensive medical treatment that followed and her battle to receive mainstream education. Krystie's bravery and zest for life is an inspiration to us all, but especially to those facing a diagnosis of genetic illness. "My future's full of uncertainty. Sometimes I worry that because of my illness, I won't be able to do much for myself later on in life; that all my days of fun have been and gone. But I realise that actually that isn't true. There's always another happy day just around the corner. Life is for the living, and I refuse to sit back and allow everyone else to move on without me. . But I do know one thing, whatever happens, I won't waste a second of my life, not ever!" Krystie Maddox-Lue, 2006

Perfectly Flawed: Living With Genetic Illness

Maddox, Molvia

Parenting & Relationships

Impress Books

See the best price to sell, buy, or rent books by Maddox, Molvia. BookScouter helps to compare book prices from 25+ online bookstores and 30+ buyback vendors with a single search.

Books by Maddox, Molvia

See the best price to sell, buy, or rent books by Maddox, Molvia. BookScouter helps to compare book prices from 25+ online bookstores and 30+ buyback vendors with a single search.

Perfectly Flawed: Living With Genetic Illness