The outlook for children with hemophilia keeps getting better. Treatments are safer, easier to administer and new, longer-acting products are becoming readily available. Specialists at comprehensive hemophilia centers all around the country offer innovative treatments while advancing national standards of care. Experts at these centers give patients and their families access to the latest clinical and research developments. By emphasizing the importance of early diagnosis and intervention to prevent complications, these specialists create an enormous impact on patients’ health and long-term well-being. So it’s safe to say that there is every reason in the world for parents of children who have been diagnosed with hemophilia to be hopeful about their child’s future. Nevertheless, having a child with a chronic illness presents many challenges. There is much to learn, much to understand, a lot to teach and a new reality to adjust to. Concerns about bleeds, joint damage, inhibitors and pain are very real. We interviewed parents whose children are treated at the Boston Hemophilia Center about their experiences. In this book they share what it’s been like to raise a child with hemophilia from birth to age 6. Through their stories, we appreciate that the journey from receiving an initial diagnosis to feeling capable and in control of the situation can take more than connecting with a team at a treatment center. Home care nurses, other families who have children with hemophilia and myriad of other resources all play important roles in a newly diagnosed family’s capacity to cope. These families understand what it’s like to have a child with hemophilia like no one else can. The guidance, understanding and practical tips they offer from their own experience are gifts to others who are embarking on this journey. In this book, you’ll find excerpts of conversations with 19 parents (15 mothers and four fathers) of children with hemophilia A or B. The children have mild, moderate or severe hemophilia and come from a variety of backgrounds. Some parents knew that they might have an affected child, while it came as a complete surprise to others. Despite each family’s particular challenges, they have all faced similar heartaches and struggles, made huge achievements and seen unanticipated rewards. This book is their gift to you. I give a heartfelt thank you to the Boston Hemophilia Center for its support for this project and, of course, to Ziva, Allie and all of the parents who helped to make this book a reality.

The Gift of Experience II: Conversations with Parents About Hemophilia

Gray, Laura

Chamberlain, Charles

Mann, Ziva

Boutin, Allie

Medical Books

Camden Writers

The Layman's Assistant (1862)

This scarce antiquarian book is a facsimile reprint of the original. Due to its age, it may contain imperfections such as marks, notations, marginalia and flawed pages. Because we believe this work is culturally important, we have made it available as part of our commitment for protecting, preserving, and promoting the world's literature in affordable, high quality, modern editions that are true to the original work.

Literature & Fiction

Literary

Kessinger Publishing

This scarce antiquarian book is a facsimile reprint of the original. Due to its age, it may contain imperfections such as marks, notations, marginalia and flawed pages. Because we believe this work is culturally important, we have made it available as part of our commitment for protecting, preserving, and promoting the world's literature in affordable, high quality, modern editions that are true to the original work.

The Layman's Assistant

Kessinger Pub

History

BiblioLife

This is a pre-1923 historical reproduction that was curated for quality. Quality assurance was conducted on each of these books in an attempt to remove books with imperfections introduced by the digitization process. Though we have made best efforts - the books may have occasional errors that do not impede the reading experience. We believe this work is culturally important and have elected to bring the book back into print as part of our continuing commitment to the preservation of printed works worldwide.

Contemporary

Nabu Press

Kessinger Publishing, LLC

Threads of Resilience: How to Have Joy in a Turbulent World

What if you could be mentally prepared for the next major financial, physical or spiritual difficulty that will strike in your life?What if teenagers could be emotionally strengthened before the next mass school shooting, terrorist attack or cyber bullying incident?How would you feel today if you knew you were ready and resilient enough to survive the hardest challenges of life, regardless of what they might be?Authors Charles, Laraine and Jeremy Chamberlain believe there are "threads" that can become constants in our lives to pull us through difficulties. The great news is, we can develop and strengthen these "threads" before the turbulence hits.Read on about specific threads to: - Learn how to access greater joy today, even during your most challenging trials.- Discover how to gain more abundance with less money.- Feel confident and prepared to face hard situations that everyone will inevitably face."I think so many times in life we are looking for good times to make us better people. We are looking for a good economy, better jobs, and longer vacations when in reality it isn't those things that make us our best selves but rather it's what we choose to take away from the difficult times." - Jeremy Chamberlain (page 45)"It was so difficult to trust the current. Finally, as we arrived at the end of the river trip we looked around us in amazement. There was a green meadow surrounded by beautiful trees covered with vibrant orange blossoms . . . It was one of the most beautiful sights we had ever seen. We sat there in awe, taking in the feeling and beauty of the scene in front of us. It was then we realized the current was only bringing us to paradise and trusting the current would've allowed us both to enter this paradise relaxed instead of exhausted from fighting the current." - Laraine Chamberlain (Page 49)What others have said about this book."Congrats on a really fine book. It's a book I wish I had written. I love how personal it is; that makes it a really interesting read. The themes of abundance and forgiveness are particularly well explained. This book is a gem It's going onto my table of inspirational books because I know I will refer to it and reread it. I am sharing it with my husband and children. "Karen McGreer, RN, Licensed Family Therapist (LMFT)New Jersey, USA."I loved every minute of the read. I just keep highlighting so many things. It has inspired me to be better. I will for sure buy a book for all of my children." Charisse Holyoak, Mother and Grandmother, Hong Kong, China SAR

Business & Money

Chamberlain, Laraine

Chamberlain, Jeremy

Job Hunting & Careers

Author Academy Elite

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