Little people in America: The social dimension of dwarfism

Politics & Social Sciences

Ablon, Joan

Social Sciences

Praeger Publishers Inc.,U.S.

Little People in America: The Social Dimension of Dwarfism

Science & Math

Praeger

Format Paperback Subject Literary Collections Publisher Greenwood Press

Anthropology

Readers will find that Ablon's use of first-hand information makes this an inestimably practical source. The author begins with a definition and description of dwarfism, and then probes the range of family responses to the birth of a dwarf. Successive chapters explore developmental and medical problems, school experiences, the social world of the dwarf child, and how the dwarf child fits into the family system. Next, the author describes Little People of America--a national organization committed to providing information on dwarfism. Finally, detailed life histories of three families with dwarf children conclude this informative work.
Readers will find that Ablon's use of first-hand information makes this an inestimably practical source. The author begins with a definition and description of dwarfism, and then probes the range of family responses to the birth of a dwarf. Successive chapters explore developmental and medical problems, school experiences, the social world of the dwarf child, and how the dwarf child fits into the family system. Next, the author describes Little People of America--a national organization committed to providing information on dwarfism. Finally, detailed life histories of three families with dwarf children conclude this informative work.

Living with Difference: Families with Dwarf Children

Parenting & Relationships

Brittle Bones, Stout Hearts and Minds is written for patients with Osteogenesis Imperfecta (OI), their families and those who treat them including physicians, nurses, social workers, genetics counselors, and other persons with interests in differing kinds of physical disabilities. The book chronicles life experiences, coping patterns, and strategies for daily living of adults with OI, through personal accounts of medical experiences, education, economics, physical intimacy, dating, marriage, and general lifestyle issues. There are no other comparable books that deal with psychosocial issues of adults with OI.

Brittle Bones, Stout Hearts and Minds: Adults With Osteogenesis Imperfecta

Reference

Encyclopedias & Subject Guides

Jones& Bartlett Learning

A description of the social, educational, and economic impact of living with a neurological genetic disorder, neurofibromatosis 1. The many unpredictable and potentially stigmatizing possible symptoms of NF1, which range from physical disfigurement to severe learning disorders, may have serious consequences in every aspect of daily life. NF1 was for many years wrongly diagnosed as the Elephant Man's Disease.
Ablon examines the psychosocial costs of this misdiagnosis and the ways in which stage, screen, and television parlayed The Elephant Man into the personification of the grimmist extreme of ugliness. This portrayal engendered fear and anxiety for affected persons and their families and also had an impact on the scientific and medical communities. Ablon analyzes the factors that affect individual positive adaptation to NF1 and the demands of American society, and offers suggestions for families, support systems, and health care providers for treatment of affected individuals.

Living with Genetic Disorder: The Impact of Neurofibromatosis 1

Health, Fitness & Dieting

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Books by Ablon, Joan